FSHD Global Research Foundation

We believe in giving life to muscles by building muscles for those who can't. Through our funded research and advocacy programs, we are dedicated to finding treatments and an ultimate cure for Facioscapulohumeral Muscular Dystrophy (FSHD), while improving the quality of life for everyone who needs healthy muscles. With a commitment to complete transparency and accountability, the Foundation is leading the charge to fund world-class medical research, awareness, and education in its aim to find treatments and a cure for facioscapulohumeral muscular dystrophy. Established in 2007 by Bill Moss AO, a well-known Australian Businessman, Philanthropist, and sufferer of FSHD, the Foundation came about due to a chronic lack of medical funding and awareness towards this debilitating disease. With no government funding, the Foundation has made up for lost time, having successfully collaborated with world-class scientists having funded 49 ongoing medical research grants over the past 11 years in the USA, Canada, the Netherlands, Italy, France, Belgium, Spain, Israel, New Zealand, and Australia. This life-changing research aims to improve the quality of life for people and families suffering from this cruel and misunderstood disease, whilst working to find treatment and a cure for FSHD.